Nine Mile walk for sick boy
Tuesday, 28th May, 2013
A family is aiming to raise the profile of a neurological disorder that is close to their hearts by inviting everyone to join them on a stroll through the bush this weekend.
Mia Lawrence said her nine-year-old nephew, Hamish, has Neurofibromatosis.
Hamish’s symptoms include learning difficulties, nodules on the optic nerve, progressive lower limb weakness, osteoporosis and tumours) growing throughout his spine and body.
Mrs Lawrence has been joined by husband Greg and children Zak (4) and Joseph (15 months) in her campaign.
May is NF (Neurofibromatosis) Awareness Month and Broken Hill residents are being invited to join the Lawrence family at Nine Mile Station on Sunday for an awareness walk.
“Hamish travels to Sydney frequently for MRI scans, tests and monitoring. He and his family live in Parkes and they are unable to come for the walk as Hamish has further testing,” said Mrs Lawrence.
She said Hamish was a happy, kind-hearted, easy-going kid who enjoyed anything outdoors and was a great Magpies’ supporter.
The NF disorder also affected people in the local community, she said.
“A local family, Parree and Clint Cadd, have a daughter, Alyssa, who has NF1,” Mrs Lawrence said.
“They have offered their support and along with family and friends have been helping to organise and promote the event and raise funds.
“We are hoping that other local families who have NF will hear about the event and be able to join us on the day.”
The walk has been well supported by local businesses with generous donations.
To date the Broken Hill NF walk, the first of its kind, has raised $2,900 for the Children’s Tumour Foundation of Australia.
“Those who wish to come along for some Sunday exercise are asked to bring a chair, water and sensible shoes. Residents will be able to buy a sausage sandwich, drink and NF merchandise,” Mrs Lawrence said.
All proceeds will go towards the Children’s Tumour Foundation of Australia.
The turn off to Nine Mile Station is about 15 kilometres out on the Tibooburra Road.
To attend, contact Greg and Mia Lawrence on (08) 8088 5304 or 0448 201 979.
The walk starts at 10am.