Lions helping to set Lara free
Saturday, 8th March, 2014
By Emily Roberts
A local family, with the help of the Lions Club, is raising money for their little girl to attend conductive education programs.
The Lara Pascoe Appeal for Freedom is a major project for the next 12 months of the Lions Club of Broken Hill. They are raising money in conjunction with Lara’s family and friends so that she may attend an ongoing intensive conductive education programs in Adelaide.
Lara is an bubbly eight-year-old girl who was diagnosed with Angelman Syndrome at a very young age.
This syndrome is a rare and very severe neurological genetic disorder and causes a global development delay, causing severe physical, mental and speech impairments and an associated seizure disorder that is typically difficult to treat.
Recently Lara’s parents Bianca and Steve asked locals for help to win a grant to help Lara attend these programs.
They were unsuccessful but Lara was still able to go to Adelaide for treatment.
“Lara had great results in Adelaide we believe she would benefit greatly with ongoing treatment,” Bianca said.
“We are looking at enrolling Lara into a four-six week program later this year, but this depends on how much fundraising we can achieve as our personal finances were stretched to the max with the first three-week program and the associated cost.”
Bianca said Lara would certainly benefit from more sessions where she could continue to learn techniques to help correct her sitting and walking positions which will help improve her scoliosis and hip dysplasia and hopefully help to avoid surgery in a few years.
“The programs will also help to form a means of communication using iPads and other communication devices so that she can convey what her needs and wants and socialize and talk to others,” Bianca said.
“They would help to build her stamina and endurance so that she can complete
small tasks without becoming exhausted quickly.
“And she could learn how to improve on existing skills so that she can become more independent.”
Bianca said their fundraising efforts have been successful.
“We had great success with the cake stall and will have another one in a few months,” she said.
“We are getting some interest from people, but I think we need more awareness of why we are fundraising.
“This Sunday, we have the Lions Club hosting a movie fundraiser.
“Also my mum will be hosting a few demonstration parties where a percentage of the sales are donated to Lara’s Appeal to Freedom.”
Bianca said she would like to thank the Lions Club, local businesses and individuals who have donated their time, goods and services to help with raffles and the fundraising efforts.
Lions Club secretary Barry Hancock said when Bianca approached them last year, they were more than happy to help.
“We thought it was a worthwhile cause,” Barry said.
“We met with Bianca and Lara and decided to help them for 12 months.”
Barry said there has been about 50 to 60 tickets sold for the fundraiser.
“I encourage all locals to come down and support this fundraiser, there will be some great door prizes as well,” he said.
“We think it will be a great afternoon.”
Lara has a special bank account set up for fundraising in the name of Steve and Bianca Pascoe BSB:062-692, Account number: 12905049.