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A big day out for a good cause

Tuesday, 10th May, 2016

Child care facilitator Brooke Lance and Lailah Lihou (3) are the best of friends. Lailah was diagnosed with Neurofibromatosis 1 and Brooke is holding a fundraiser to raise funds to find a cure. Child care facilitator Brooke Lance and Lailah Lihou (3) are the best of friends. Lailah was diagnosed with Neurofibromatosis 1 and Brooke is holding a fundraiser to raise funds to find a cure.

By Emily Roberts

A big family fun day is being hosted to support a young local girl, who has been diagnosed with a neurological disorder.

Child care facilitator Brooke Lance is hosting a family fun day at Sturt Park on May 22.

“I am trying raise money for medical research to help find a cure for Neurofibromatosis (NF),” she said.

“The inspiration behind raising money for ‘The Children’s Tumour Foundation Of Australia’ is for one of the families I have become quite close with over the last year.

“Lailah Lihou (3) has been coming to my day care over a year now and was recently diagnosed with ‘NF1’.

“She is a very caring, loving and nurturing little girl. I have watched Lailah grow this past year in so many beautiful ways.

“We have learnt new strategies to cope with some of the behaviours NF1 brings.

“It is an ongoing learning process for myself and the family. 

“I would love nothing more than to help support this foundation in hope that one day they will find a cure for Lailah and for everyone else out there suffering with NF.”

Brooke said she hadn’t come across NF until the Lihou family approached her after Lailah’s diagnosis.

“I was not familiar with NF1 until Lailah was diagnosed with it. 

All children and adults suffering with NF face many different side effects which includes impulsivity, hyperactivity, inattention, social skills deficits, inflexibility, vision loss, learning difficulties, bony abnormalities, receptive language difficulties.

ADHD/learning disabilities occur in 75 per cent of NF1 patients, gross and fine motor difficulties and cognitive disabilities.

“Experiencing any of these can be scary for a small child, who doesn’t understand what is happening to their own body,” she said.

“They can become withdrawn and not cope well at school or in social situations.”

May is NF Awareness Month and the family fun day will include a fun obstacle course and family team challenges.

“The obstacle course is being hosted by Trevor Williams from ESTR Personal Training Studio and his trainers,” Brooke said.

“There will also be a barbecue with donations from local businesses, cold drinks, cakes, a jumping castle, merry-go-round, live music and raffles.

“There will be a police car and fire truck on display for children to look through and there will be NF merchandise for sale.”

Brooke said she was surprised by how much support she received from the community.

“I was very surprised by how many people have gotten behind it,” she said.

“I am truly humbled by all of the support from the Broken Hill community, without their generosity of food donations, raffle prizes, their time and support - this fundraiser wouldn’t have been possible.”

If you can’t make it on the day but would like to donate head on over to the online donation page http://give.everydayhero.com/au/family-fun-day

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